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Indiana
Consortium For Mental Health |
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Abstract Reprint
# 57: The Role of Social Networks in the Lives of Persons with
Disabilities
BERNICE A. PESCOSOLIDO
You should give Lia medicine to take for a
week but no longer. After she is well, she should stop taking the
medicine. You should not treat her by taking her blood or fluid from her
backbone. Lia should also be treated at home with our Hmong medicines
and by sacrificing pigs and chickens. We hope Lia will be healthy, but
we are not sure we want her to stop shaking forever because it makes her
noble in our culture, and when she grows up she might be a shaman.
-Fadiman
(1997:260)
In all societies, people experience illness and live with their
disabilities in communities; even when they access the health care
system, it is a human service system. Lia, a Hmong child with a seizure
disorder, and her family understand and confront her seizure disorder
with a set of attitudes and beliefs
that stand in opposition to the dominant medical culture in the United
States where her family now resides. These social forces, from the
ethnic group to the medical context to the larger society, shape the
recognition and response to problems. Too often, we have neglected to
consider that what makes people's experience in the community and in
treatment systems "success" or "failure" are
intimately tied to the kinds of relationships forged and maintained in
those contexts.
A social network perspective offers a way to break down these
large, critical components into a set of ongoing ties that chart
people's experiences. The basic premise of social network theory, in
contrast to most economic, psychological, and public health models, is
that individuals shape their everyday lives through consultation,
suggestion, support, and nagging from others. Furthermore, it suggests
that social networks set a context in formal organizations and
institutions among those who work in or are served by them that affects
what people do, how they feel, and what happens to them.
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1022 E. Third Street, Bloomington, IN 47405 Tel: (812) 855-3841 Fax: (812)856-5713 Last updated: 15 September 2004 |